Seriously !!! BLESSED
Today the Rock just started laughing. I have no idea why he was giggling so much. It didn't happen just once either. This kind of giggling is not an every day thing, even though he is usually happy. This laughter is pure JOY and you can't help but giggle with him or in my case cry for JOY.
Even in our times of trials, I CAN count my blessings! I think we all could take a good 10min. and talk about our trials. We can also take a good 15min. or more and count our blessings, joys and the things that make us laugh. I have to share a few of my incredible blessings over the last little while.
I am over come with the amount of support we have received from all of you who want to come walk/run with us in a few weeks. We can't wait to be with all of you in one place. We need and want you all to be there. Thank you for your efforts. The last two years have been a doozy and when you have loved ones rally for you and your baby in a time of need, my gratitude is endless.
Two weeks ago I needed help to raise money for treatment. We were in a time crunch and I needed all my resources. My Dad of course was the first one in line. The event was Saturday morning and come Friday night 9pm my dad calls and says "I just flew in, my wrists don't work and my knees are shot, are we a go tomorrow? I'm there!!" I hated the fact that I needed him any way he was willing. I can't put into words what that kind of love like that feels like to receive. The next day was a hard one for my dad, but as always he endured it well. All for me and my son.
My mother who always gives has put together a work lunch at the airport to raise $$$ to donate for the charity Daybreak 5k. I appreciate my mom always going the extra mile and exhausting all resources to make miracles happen. Thank you Jen and Russ for donating to this lunch and make it more profitable. Thank you Continental for making it happen.
Our amazing family and friends made it possible for us to move and get settled in one day. Moving again weighed so heavy on everyone in our family. Yet with the help and love from all of you it was smooth sailing. We are blessed to have each and every one of YOU!!!
It has been wonderful to be welcomed by sweet treats, little ones knocking on the door and visits. It's the little things in life that give the most, a hug, bread, cookies, a knock on the door, a phone call, an invitation all have made us feel at home.
I could keep going on and on and not to show anyone up, I needed to share my gratitude for me and my family. I hope that you are counting your blessings. My 15min. are up. We love you and hope you know how special you are to our family.
Come WALK for the ROCK......
On September 18th, Saturday @ 10am Daybreak 5k for Operation Kids Scholarship Fund for Autism. All proceeds will go to scholarship funds for many families receiving treatment, including us. It is not possible for the Rock to get the help he needs without this scholarship, so we are asking forc help. Registration is only $5 with the encouragement for everyone raise additional funds to donate. If you would just like to donate to Operation Kids Scholarship Fund for Autism please go to the registration site and click "donate". We encourage everyone to tell everyone about this great event.
All of you that would like to walk/run in honor of the Rock please contact me so that we can make matching shirts saying WALK for the ROCK!
Not only will there be a fun walk/run that day, Daybreak will also be hosting a health fair and a Fizz Fest with lots of fun activities for kids. I hope that all of you will come and enjoy this day with us!
Talents and Autism
Check out my post on Autism Journeys Blog about talents. I've included a video of the Rock swimming. If you haven't had the pleasure of watching this miracle you've missed out and don't have to anymore. The first time we went to the pool this summer I had every mother and life guard jumping on me and him, making sure I was paying attention and he wasn't drowning. Everyone is used to us now so it tends to be a bit less stressful. Hope you enjoy watching.
MOtiVAtion
This is the Rock's new found motivation, Ms. Gamee. We started working with Gamee to teach the Rock how to walk and stay with me, instead of running away ALL the time. After just one lesson (which I wasn't sure was successful) the Rock knew what to do with Gamee. Kate Andersen, Gamee's mom and founder of Autism Journeys, was walking ahead of the Rock with Gamee and the Rock started reaching and whimpering for Gamee. This action is outstanding for the Rock. He has just recently started to ask seldom for food or drink, so for him to ask for Gamee after just one time I was shocked. I am optimistic that Ms. Gamee can pull more out of my angel and can't wait to be there to witness the next miracle and milestone!
To find out more about Ms. Gamee, canine therapist, or Autism Journeys checkout their website www.autismjourneys.net or the blog www.autismjourneys-aj.blogspot.com. We love this place and people who bless our lives every day.
SWIMMING
For all of you out there who have seen me or will see me at the pool, NO the Rock IS NOT DROWNING!!! I AM watching him and he is having the time of his life. I promise to post a video with him swimming because it's incredible. I know it may look scary but it's not. It is difficult for him to have me so close all the time so I give him some space here and there. I also make him work by getting him to talk to me by asking for "more" when I throw him in the pool or have him count "1,2,3" and jump in off the side. The fact that I can get him to talk to me in the pool with so much going on is huge. Sometimes I can get him to LOOK and talk to me but not always so this is what I'm trying hard to work on. BUT he can't work all the time so I MUST give him a break and back off for a minute.
The Rock is SO incredibly happy in the pool it's amazing. He is almost 21/2 and with a life jacket can so freestyle and breaststroke, which of course is all self taught because it's not like he would follow any instruction even if I tried. He can hold his breath longer than Taz and knows that when he needs a breath or a rest to roll onto his back and float. It's amazing his instincts to do this. Punky was the same way at the same age only difference is that although she had many instinctual qualities she still also learned by following our directions.
So if you happen to see us in the pool you are witness to something amazing and wonderful. I consider myself lucky to be apart of it and hope that you do to.
***I do realize accidents happen everyday and know one is exempt from them. I appreciate your concern on our behalf and thank you for watching out for my little ones.
autism & trips
Every time I leave the house and go somewhere out of the norm I am always shocked by how comfortable I am at home and how anxious I am everywhere else. SO a trip is far above the occasional visit other than home. A trip with the Rock brings a whole new meaning to anxious and yet I get comfortable in my routine and think "Sure! We can go on a trip, it will be good to do something new." This statement is true, HOWEVER it doesn't make anything easier. I realize life can always be harder and I am extremely blessed for everything I have.
A trip for the Rock is way more difficult for him than me, he just can't explain that it's difficult. If the Rock had had a choice he would have stayed inside the hotel room the entire time playing with the fabulous toys the Johnson's brought or swimming in the pool (but even that got too cold after awhile). The torture of having to eat or stay with us at all times or be with so many people all the time was a lot to take in. I think all in all we did OK....except when it came to sleep. Only one out of the four nights did the Rock sleep. This is so NOT normal that this was the wake-up call that life was way difficult for him.
Once we were home it took us a week to get back to normal sleeping patterns, no tantrums(head banging) over everything, playing with us again and eating something was a huge accomplishment by the end of the week home. I think everyone has to adjust to changes, but for the Rock it's just a little bit harder and I don't know what he wants or needs. This I hate and can't wait for the day he can tell me.
No this does not mean that I'm not going to go on a trip again, it just means I am aware and will do my best every time to make it the best experience for everyone.
FaMilY TrIp
We were all excited to go to the beach for the first time in a year. We have all missed it so much!!! On top of that we went with the whole family (missing the Kinsmans :( . We all had a great time at the pool, happy hour, and our daily enormous breakfast (these were the favs). We enjoyed a nice bike ride, until a tire popped luckily close to home. A good old fashion pirate treasure hunt was a highlight with kite flying on the side. AND of course what's a family trip without a little drama....no not any fights (other than the usual banter between Heman and Grammy) just a small panic when Taz went jumping into the pool after his sisters, while forgetting he wasn't wearing his life jacket. Taz paddled as hard as he could until a good Samaritan jumped in and saved our sweet Taz. These are some of the captured moments I got, Kel and Sade got more.
THANK YOU! THANK YOU! THANK YOU!
This weekend was a big one for us, full of wonderful family events ALL weekend. The fun didn't stop until yesterday afternoon. I can't tell you all enough how much it meant to us that you were there for Spunky's special day. Her decision to follow her Savior, Jesus Christ, and be baptized was a big decision and one she was really excited about. We were so happy to have our family and friends there to support her. We love you all so very very much.
6 months LaTeR....
I can't believe that it has been since months since the Rock was diagnosed with Autism. The intial overload hasn't totally worn off but has become smaller. When I first took the Rock to see the doctor I felt like I was loosing my son, today I feel like I am a part of his world. EVERYDAY miracles happen at our house, I think they probably happen at yours too, it's all in how and what you see as a miracle. To us miracles include:
*the girls wanting to read the scriptures or read at all
*Taz not going to timeout
*the Rock eating!!! (just eating anything is good)
*Punky enjoying school
*Spunky saying she's smart
*the boys playing together
*the Rock following/understanding any direction
*the Rock crying when we leave him
*Taz playing and learning
*the Rock pointing for something he wants
There are so many others, but the simple things ARE the tender mercies and miracles sent from heaven above.
***disclaimer I write this to remind me of my blessings, it's way to easy to get caught up in all that is needed, I prefer to see the miracles (right now anyway).
hApPY bIRtHdAy PUNKY!!!
Punky is growing so fast I can't believe it! My baby is 10! She is a fabulous story writer, lovely singer, and amazing artist. These are all things she loves to do and it shows in the work she produces. She is a very logical thinker and can come to very wise conclusions on her own. This is exiciting and difficult at times. We love her so very much and has changed our lives for the better everyday for the last 10yrs.
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