dark or closed spaces
Catch uP
Time FLYS.....
when you are crazy busy with what's that thing called? Oh yeah!
because right now the thought of putting my baby on a bus makes we want to throw up. There are so very good discussions both ways and I will just wait and see. I still have two months to decide.
The Rock will have a brain wave hearing test done this month to make sure he can hear completely. He has now failed his hearing test 3 times. We know he can hear, we just want to know to what degree. It will most likely turn out great, but it will also be great to have definite answers. With autism there are so many things that are not definite that it will be great to have some solid info one way or another.
Nursery time is getting better and better. I think the routine is settling in with him. He is now joining the group for snack at the table (miracle 1), today he smiled during singing time (miracle 2) and made it through without his trusted huge dinosaur (miracle 3). I am so grateful for such wonderful teachers who understand that these little things are miracles and make a point of telling me and celebrating with us. (miracle 4) Seriously when you see these little things as miracles you can't help but be in awe. (side note: Of course it IS difficult to remember these when you are totally exhausted from all the other things that I can't possible write because it would take forever)
LIFE
I cannot believe it's been a year since the Rock's diagnosis. Oh how we have become so used to traveling to Lehi every few days for therapy and having therapists in our home. I cannot believe that in just two months my baby will go to preschool AND possibly ride a bus. I say possibly
because right now the thought of putting my baby on a bus makes we want to throw up. There are so very good discussions both ways and I will just wait and see. I still have two months to decide.
The Rock will have a brain wave hearing test done this month to make sure he can hear completely. He has now failed his hearing test 3 times. We know he can hear, we just want to know to what degree. It will most likely turn out great, but it will also be great to have definite answers. With autism there are so many things that are not definite that it will be great to have some solid info one way or another.
Nursery time is getting better and better. I think the routine is settling in with him. He is now joining the group for snack at the table (miracle 1), today he smiled during singing time (miracle 2) and made it through without his trusted huge dinosaur (miracle 3). I am so grateful for such wonderful teachers who understand that these little things are miracles and make a point of telling me and celebrating with us. (miracle 4) Seriously when you see these little things as miracles you can't help but be in awe. (side note: Of course it IS difficult to remember these when you are totally exhausted from all the other things that I can't possible write because it would take forever)
MaMa!!
I can't believe I haven't posted this amazing news yet......At the beginning of November the Rock was in his class. When class was over his teacher knew I was down the hall so she was bringing him to me. As they got close the Rock reached out to me and .........said.........MaMa! This is the first time he has ever seemed to call me anything. This was such a wonderful moment. I snatched him up and squeezed him as I cried. My heart goes out to all you moms that haven't heard these beautiful words from your child. Now that I've tasted the magic of being his MaMa I want to hear it again. In time I'm I know I will, some day soon.
The Rock has learned to play a matching game with our family photos. This game is just a means to teaching him to talk and in some way know our names. As he plays this game he will sometimes look at the picture, repeat the name and then if the person is with him he will look at that person. He's getting it!!! Little by little we are conquering. My favorite sound he makes is for Punky's name. He sticks his tongue out and as if he is licking his lips back and forth he makes the "L" sound. It is so adorable. It happens so fast I don't have video to share, sorry.
progress
The Rock has gained a few more tricks and it is so exciting. He has started to understand the value of pointing and actually doing it. We started with two see through cups with dots on them, we would put one preferred thing in one cup and a non-preferred in another cup. We asked him to point to what he wanted. The first two days we helped him point, by holding his hand, but after a couple days he started to pointing on his own and a couple days after that he started pointing to things on his own. Pointing is so exciting because he has learned that he can communicate what he wants. A month ago he didn't have any wants. Now he brings me what he wants or points to it. He even is doing two steps by pointing to something up high and then pulling on me to and saying "u"(up) and then pointing to what he wants. As I write this seems so simple, it is, but it is such a big deal.
My son ASKS for things, yeah!
My son asks ME for things, yeah!
My son WANTS something, yeah!
The simple things you never knew were fundamentals are such BIG deals in the Rock's life. I love that the little things are big accomplishments. It makes life full of miracles everyday, that we took for granted before. It also makes life feel like we are climbing mountains everyday instead of bumps, but life comes in all sorts of trails. It's the attitude we face them with that makes the difference. Sometimes the attitude is the mountain I climb, thanks to miracles everyday, PEACE can find me if I let it.
My son WANTS something, yeah!
The simple things you never knew were fundamentals are such BIG deals in the Rock's life. I love that the little things are big accomplishments. It makes life full of miracles everyday, that we took for granted before. It also makes life feel like we are climbing mountains everyday instead of bumps, but life comes in all sorts of trails. It's the attitude we face them with that makes the difference. Sometimes the attitude is the mountain I climb, thanks to miracles everyday, PEACE can find me if I let it.
Like Father, Like Son
tactstile defensive
catching up
IN YOUR FACE
So every day I am faced with the reality of progress in slow motion with the Rock, but progress nonetheless. I try hard to stay focused on the good things that are happening. I am constantly running here and there and catching up on all the normal MOM stuff along with side jobs here and there. Therefore I stay in my own reality a lot of the time, especially when it comes to the Rock.
Last Friday my reality was knocked over. It was the first time I had my niece over for the whole day without any other kiddos, except the Rock. I knew this was going to be very good for him to have someone his own age to play around and watch. Usually all the big kids are around and so she runs off with them, well this day was different. They played side by side and didn't bother each other too much. I think for the Rock and my niece it was a great day for them.
For me....the hardest day I've had in awhile. I had to keep myself from crying all day, because I felt that all day I had someone screaming at me "YOUR SON IS AUTISTIC! YOUR SON IS AUTISTIC! See the difference between these two?" Reality breached! OK I get it, I know and it's OK! It's just that sometimes we are faced with reality checks. Tough ones at times.
We are looking forward to this Friday when my niece comes over again. What will she teach us next and how can we learn from her? Having her is a blessing in our lives and sometimes blessings hurtsdon'tit?
Progress!!!
Every day there is something wonderful that happens at our house, especially when you are counting up how many times you get eye contact. I can't believe that nine months ago my son couldn't do all the things he can do now......
*eye contact
*plays with us
*talk- words come and go and what we had a year ago we don't have today, but what we do have is good and we've had it for awhile....go, more, candy, cookies (food), drink, shoes, ball, most of these are sounds and signs for words, but I'm so glad he is understandin a need to talk to us.
*comes to me for comfort
*less stimiling more regulating
*wants to be with us
*understands "Let's go!" (this happend last week and Spunky pointed out to Nana "Did you see that, that was a miracle, he just listened and followed my mom!" She was so elated with joy for her brother. The simple things!!
*holds my hand when walking (most of the time)
I hope that after reading these things you can add them to your list of simple blessings everyday. I didn't count these as blessings with the others, I took these simple things for granted. I don't ANY more!
I thank my Heavenly Father every day that the Rock has never forgotten or lost the ability to kiss me when asked. This is a total miracle and I am so grateful. The kisses I get from my little boy are the highlights to my life. I hope you get kisses every day!
Love Me XXXX
Subscribe to:
Posts (Atom)